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HealthBixby > Diabetes > Radha misdiagnosis: The story of Billy Rigby
Diabetes

Radha misdiagnosis: The story of Billy Rigby

September 11, 2025 8 Min Read
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Billy Rigby smiling into the camera
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Table of Contents

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  • What scenario led to the preliminary analysis of Kind 2?
  • Have been there any warning indicators that one thing was flawed?
  • How did you uncover that you simply had been misdiagnosed?
  • What challenges have you ever encountered with the healthcare system?
  • Is there a distinction between administration and remedy after receiving the proper analysis?
  • What would you suggest to others who you suppose might have been misdiagnosed as properly?
  • Do you will have any recommendation from a medical skilled?
  • Closing Ideas
  • Edit Reference Supply

Potential autoimmune diabetes in adults, or LADA, is, briefly, a comparatively uncommon diabetes. It’s also known as kind 1.5 diabetes.

Many individuals could also be misdiagnosed as kind 2 diabetes as a result of they don’t require insulin remedy within the brief time period after analysis. It’s also identified solely throughout maturity.

We sat with 41-year-old Billy Rigby, who lives in Pennsylvania, who has formally lived with Ladha diabetes for the previous two years. In 2018 he was advised he had kind 2 diabetes.

This type of diabetes shares the properties of each kind 1 and kind 2 diabetes. 2-12% of all circumstances of diabetes are LADA, lots of that are initially misdiagnosed as kind 2 diabetes.

learn extra: Ladha Diabetes (Potential Autoimmune Diabetes in Adults).

What scenario led to the preliminary analysis of Kind 2?

Rigby was initially identified with kind 2 diabetes in 2018. He remembers this fashion.

“Emotionally, I used to be devastated. I used to be confused and harm at first. I felt like I had all the things proper, I used to be shedding pounds.

He continues,

“After discussing with my well being staff, I realized that it’s genetics. Sadly, that wasn’t what I did. Name it genetics and name it dangerous luck, however it wasn’t my fault. I could not lose it bodily, so I could not lose it.

Have been there any warning indicators that one thing was flawed?

Rigby says he knew one thing was flawed after residing with a kind 2 diabetes analysis for nearly 4 years.

“There have been so many indicators that one thing was flawed, however at first I did not comprehend it was an indication. It was a scary half as a result of the summer season was so lively.

“The urination and fixed thirst had been once I was questioning if one thing was flawed, after which I started to crave milk. I am not a milk drinker, however I felt it was good to drink that summer season.”

He says,

“Weight reduction started to be issues in the direction of the top of summer season 2022. I used to be bodily having issues too. People who had been simply lifted up earlier than had been now giving issues. I used to be simply standing and drained.

“My imaginative and prescient was blurry. I used to be very sick. I could not even push Gatorade or water. Once they admitted me, my glucose was 792 mg/dl. I did not bear in mind a lot about it.

He continues,

“I awoke a day and a half later. They advised me I used to be in DKA (diabetic ketosidosis). I used to be (ladha). I did not know the place I used to be, so the very last thing I bear in mind was driving to Ohio to my subsequent job website.”

How did you uncover that you simply had been misdiagnosed?

As time progressed previous to ICU visits, Rigby’s blood sugar ranges had been now not managed by way of weight loss program and train alone. He says,

“Strolling up in an out-of-state ICU was hardly ever the way in which I found it. We had a genetic check, when it turned official. The cells that make my insulin had been slowly eliminated by the immune system and I turned a lad.”

Along with including an insulin injection to his routine, he needed to be stricter about counting carbs and measuring what he was consuming as somebody within the ladder.

In response to Rigby, it was an enormous adjustment.

What challenges have you ever encountered with the healthcare system?

Rigby says it was tough to navigate the healthcare system.

“There are way more challenges than anticipated, from getting an insulin pump or insulin on time to getting sure issues not lined in time. It did not take a day or two with out an insulin pump or insulin.

He continues,

“Residing with LADA and all of the medicines and gadgets is far more tough than the way in which I lived with Kind 2 diabetes, the place I managed it with weight loss program and train.”

Is there a distinction between administration and remedy after receiving the proper analysis?

Rigby says,

“I do know higher in regards to the meals I eat, and I do know much more than once I was identified with Kind 2. I depend extra carbohydrates, do sure workout routines, and clarify extra about issues that attempt to waste insulin.

What would you suggest to others who you suppose might have been misdiagnosed as properly?

Rigby says that if you happen to really feel one thing is flawed, that you must empower your self.

“Attain out to your PCP and allow them to know that you simply really feel you’ll have different points. My PCP (nice, I really like her) did not find out about genetic testing that would let you know if you happen to’re a Radha or not.

He continues,

“They are saying there are solely two methods to find if you happen to’re a ladha. It is a genetic blood check or, like in my case, you will have a medical emergency. Your physique is aware of it feels completely different.

Do you will have any recommendation from a medical skilled?

Rigby says,

“You probably have a diabetic affected person, it is in everybody’s finest curiosity to know if it helps them obtain the perfect care.”

“And simply perceive. My healthcare staff reveals that they perceive what I am going by way of and present empathy and care. Care for T2D sufferers and understand that they will really be lads of their 30s and 40s.”

Lastly, he says

“If you’re identified with Radha, your life will change, however it won’t finish. This can’t be completed. This isn’t simple, however you are able to do this! We will all scare the analysis.

Closing Ideas

Billy Rigby’s journey with Radha highlights an necessary facet of diabetes care: the significance of correct analysis. Misdiagnosis can result in years of inappropriate remedy and pointless issues.

For these experiencing signs that aren’t defined within the present analysis, his story underscores the worth of self-advocacy. If one thing is felt, you will need to search additional analysis.

With correct analysis and remedy planning, individuals with diabetes of every kind can reside a satisfying life regardless of the hurdles they could face first.

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